Camping with Autism

An Autism Guide to Camping

The camping experience can be fun for even those with autism.

Camping with Autism: Tips for a Positive Experience

To ensure that things go smoothly on a vacation in the great outdoors for those with spectrum challenges, here is an autism guide to camping.

You will find important sensory considerations as well as advice on campsites and equipment that will help you make the best decisions when planning your trips.

 

Passing on a love of camping…with some “growing pains”

I loved camping as a small child.  My first family vacations were at state parks and lakes in a pop-up camper. We hiked, cooked over a campfire, and went swimming, canoeing and fishing.

I have a deep nostalgia for what camping means: family bonding, respite from home activities, and a chance to rejuvenate in the relaxing outdoors.

Wanting to pass that love onto my own children, we decided to begin with tent camping.  We chose a park about 30 minutes away. Our site was right on the edge small lake, so we could fish right off the bank.

Things went fairly well that first night…until about 5 a.m. the next morning. My daughter woke up screaming at the top of her lungs and could not be consoled.  This caused my son to panic as well.  We decided to just pack up and leave right at sunrise, fearing the wrath of our campground neighbors (hopefully) still asleep.

Extremely disappointed, we sort of…gave up for a while.

If only we were simply more realistic about camping to begin with we could have given it another go while they were young.

Now that my teenagers have successfully experienced tent-camping with the Scouts, we decided to invest in a pop-up camper.  We love it! We cook over a fire and read books in hammocks; when it rains we play games inside the camper.

Hopefully our own camping experiences over the years will serve as a guide to help you decide how you should approach camping having autism in your own family.

 

Practical Advice for a Positive Camping Experience

Ahh...the smell of campfire cooking!1. Consider the “5-senses” of camping.

The smell of a campfire. The sight of a fire lighting up the night. Unless you are camping by yourselves in the middle of nowhere, then be prepared to encounter lots of other campers, too.

The level of these sensory experiences depends on the location of the campground and your individual campsite as well as the people around you.

Assess how your child’s sensory needs can be accommodated on a camp-out considering the five senses:

  • Sounds: range from quietly muted to loud, such as nearby site conversations; kids yelling to one another on their bikes; loud diesel trucks going by; sounds of birds and other animals; dogs barking; etc.

 

  • Sights: range from minimal stimulation to moderately high, such as a private tree lined site to wide open spaces with lots of games and other social activity between people of different campsites. Some campgrounds form little communities of people of who come back year-after-year.

 

  • Tactile: Some camping pads are gravel rocks with some dirt or grass while others are a smooth concrete pad. Handling wood or sitting on a rough picnic table may irritate some. If your autistic child likes deep pressure, then swing hammocks are a perfect way to relax.

 

  • Smell: most smells are muted, but others can be strong like smoky campfires and fuels from cars driving by while others are very pungent (think “outhouse”).

 

  • Taste: if your child is sensitive to different waters, then bring your own water. Most full-hookup sites have water available, but you may want to use it only for external purposes (i.e. washing).

 

2. Choose the right location.

So much of your experience depends on the location of the campground and your site within it. Find out the level of accessibility for personal needs, safety, and recreational amenities.

Some campgrounds have websites or videos of their sites to show what it’s like. Or, call the campground for more info. (Poor Farmer’s RV campground in Ohio is one that serves both short- and long-term campers.)

Ask yourself these questions:Choose your camping location with care.

  • Is the campground and/or some sites completely in a wooded area or in full sun? This can be a critical element if someone in the family is sensitive to sun and heat.

 

  • Does it have natural privacy barriers and plenty of space between sites, or is there very little privacy?

 

  • What is the terrain like? Rough, steep, or flat?

 

  • Does it have access to water and electricity or will you be totally roughing it?

 

  • Does the campground and site fully accommodate someone who needs a wheelchair or other medical equipment?

 

  • Is there WiFi available in case of emergency (or can you easily reach someone at the campground office)? Many state and national parks have limited or no internet access while private campgrounds may have WiFi available for guests.

 

  • Is your site accessible to other activities and restaurants or is it pretty remote?

 

  • Are pets allowed? What rules are in place if dogs are allowed?

 

  • If your child is a runner, would you be able to get help right away?

 

  • Is the location near water if your child is not yet a swimmer?

 

  • Would you feel comfortable giving your child some room to explore the campground on his or her own?

 

3. Assess your accommodation needs.

Your camp experience can range from living like a pioneer in a makeshift tent to “glamping” like a rock star in a mini-apartment on wheels.  Consider your family’s needs and previous experience staying in places away from home.

Could they actually “rough it” or would they need a more familiar setting like your own home?  Here are some pros and cons of each type of camping accommodation:RVs have many comforts of home suitable for most autism families.

TENTS…

  • Pros—cheap; relatively easy to set up; can be brought on a plane; set up anywhere; ideal for getting into remote places with fewer people.

 

  • Cons—may not be fully weather proof (rain, wind, cold, heat); little room to move, sit, stand; may not sleep comfortably; tight quarters for a large family or older kids; may need to bring a lot of loose items to camp.

 

POP-UP CAMPERS…

  • Pros—compact and lighter to tow (most cars); cheaper than most campers; queen or king-size beds; can sleep a whole family; often includes sink, stove and possibly a shower/toilet area.

 

  • Cons—smaller space than a travel trailer; takes at some time and effort to set up; canvas can tear and have holes; may not have access to some campgrounds (especially those out West if bears are a concern); not suitable to keep pets inside if you leave; may not have a toilet.

 

TRAVEL TRAILERS…

  • Pros—not much to set up; can store items inside; fits most campsites (depending on size); can take your vehicle to go places; full bathrooms and decent size kitchen areas; great for longer vacations (week or more).

 

  • Cons—need a larger truck or SUV to pull; new campers can be expensive; some beds actually smaller than they appear in photos; may require a lot of gas to tow.

 

RVs….

  • Pros—very little to set up; “home-on-wheels” style comfort with nicer kitchens, beds and bathrooms (maybe even washer/dryer); large space (especially bump-outs); ideal for long-term camping (weeks to months).

 

  • Cons—very expensive; may not fit in some campgrounds; must tow a separate vehicle if you want to go other places; expensive to repair/can break down while traveling; various states have different restraining laws when traveling in an RV (children must still be in a car seat facing forward which can be a problem in an RV—best if they ride in a separate vehicle).

 

4. Be prepared.

Plan and budget well. Get to know the campground and local area well before setting off. Pack what you need and find out if you can purchase items you missed at a nearby store.Enjoy nature in beautiful state and national parks.

  • Find out about all the amenities of the campground. Do they have electric/water hookups? Pool? Bike rentals? Horseback riding? Boating? Hiking trails? Playgrounds? Campground sponsored games and activities?  Seasonal events? A nice view? A campground store?

 

  • What is your total budget? What is the cost of gas, food, campsite, rentals? Be sure to check out all the “extras” you’d like to do, not only at the campground but also the local area (i.e. museums, restaurants, shopping, etc.).

 

  • If your child wants to swim but needs assistance, take swim lessons. Learn to ride a bike before camping. Buy the necessary equipment to make sure everyone is safe.

 

  • Be sure to pack comforting sensory items if camping is new and strange for your autistic child.

 

5. Be realistic about what your family can handle.  

If you are completely new to camping (i.e. never even been inside a tent or camper), then consider renting a camper. Some campgrounds will even have their own campers available for you to rent. Others, like Fort Wilderness at Walt Disney World, will allow you to rent a camper that is brought in and set up by a local company. You get the benefits of camping without all of the work.

Some tents are a cinch to set up even for those certain challenges.

  • Buying camp gear is a big investment!  Consider how many days out of the year you’d like to camp and how much time, effort and work you want to put into setting up camp. Do you want the old-fashioned camping experience of sleeping on the ground and cooking outside or do you want to be more comfortable in a nature setting?  Are you in this for the long haul or just want to experiment with camping?  Ask yourself these questions to figure out the type of camping equipment you need.

 

  • Assess the skills, interests and patience of everyone in the family. What safety skills does your autistic child have? Do they need supervision while swimming, biking, walking, etc.? If you plan for certain activities but someone suddenly doesn’t want to participate, have a back-up plan. Ease into the experience if this is new for most members of the family (especially children with autism). Camping requires learning different skills, so be gentle with yourself and others.

 

  • If your family is miserable despite efforts to make it enjoyable, don’t be afraid to “throw in the towel”. It doesn’t mean you won’t be able to camp again—make adjustments for the next time (i.e. location, number of days, type of sleeping arrangements, etc.). Maybe staying in a cabin instead of a camper would be best.

 

Unwind…

A pop-up is an ideal "middle-ground" camping experience with autism.Successful camping experiences actually take a bit of practice.

It took our family three times of setting up and tearing down the pop-up camper to feel comfortable with the process (and not get upset with one another).  We wanted a step-up from tent sleeping without losing the more traditional camping experience.  My kids appreciate the large king-size beds. I love the heat and air conditioning.

We still tent-camp with the Scouts. But having a comfortable camper allows us to relax and sleep a little better. When we retire, I’d love to get a travel trailer for longer excursions to places on my bucket-list.

Camping is a wonderful way for families to reconnect by “unplugging” and interact with one another more.  You can relax for a little while without the burden of each person’s different daily routines and other home obligations.

Even if it’s only for a weekend, short trips are often what is needed to feel rejuvenated from everyday life.

With the right planning and attitude, camping can be a joyful, memorable experience!

 

 

An Autism Guide to the Indianapolis Children's Museum

An Autism Guide to the Indianapolis Children’s Museum

See a mama dinosaur and her baby trying to get into the Indianapolis Children's Museum!

Your Autism Guide to the Indianapolis Children’s Museum

If you have ever wanted to visit the Indianapolis Children’s Museum but were afraid of an intense sensory environment, then allow me to guide you as you navigate your visit with an autism.

 

The “Awesome-est” Museum on the Planet!

What do dinosaurs, a space station, a giant “chocolate” slide, an archeological dig in China, an old-fashioned carousel, and Super Mario Brothers have in common?

Why, they are all located at the Indianapolis Children’s Museum!

There is no other museum that my family and I have visited that is quite like the Indianapolis Children’s Museum.  You can spend several hours, even days, exploring its 5 floors of highly interactive, sensory and educational exhibits.

While most exhibits are permanent, some are temporary for a few months (such as Paw Patrol) or a few years (Take Me There Greece). With actual science experts and interpreters available to answer questions, this is truly a working and ever-evolving museum.

 

Obsessions Fulfilled!

Trains, trains...who loves trains? Find them here at the Indianapolis Children's Museum.Is anyone in your family really into model trains? They have several displays and places to play with toy trains…and an actual steam locomotive used in the late 1800s!

 

Is anyone into dinosaurs? They have real, life-size dinosaur bones on display, a “dig for bones” site, and play areas with giant eggs and dinosaur figures.

 

Is anyone into learning about archeological finds from Egypt, China and the Caribbean? Try on scuba gear, put together pieces of a sarcophagus, or use tools to discover relics from China’s past.

 

Visit a replica of the Space Station at the Indianapolis Children's Museum. Is anyone into space exploration? Discover what it’s like to live on a space station and watch the frequently-run planetarium films on different space-related topics.

 

And much, much MORE! (I’m just scratching the surface of what is there.)

Not Just for Kids!

While its name implies that it’s only for children, I highly beg to differ.  Just recently they had an enormous exhibit of Star Trek paraphernalia, including models of the Enterprise and the costumes worn by the original cast of the TV show and most recent movies.

 

My old Star Wars lunch box is here! I was as giddy as a small child upon discovering that they had my very first lunchbox—a red Empire Strikes Back—encased in a display.

 

The Indianapolis Children’s Museum is truly a place for ALL ages. Each exhibit caters to the different developmental stages and sensory experiences—audio, visual, tactile, smell, kinesthetic—making the museum a complete and playful learning environment.

 

Warning…Potential Overload!

Because it is so sensory rich, this can pose problems for some children and adults on the spectrum.  For one, it can be incredibly LOUD.  It can also be very CROWDED (like, theme park crowded) on certain holidays and weekends.

Some displays are very visually stimulating.  The planetarium can be overwhelming for those afraid of darker spaces.  My own autistic children experienced sensory overload within about 4 hours, needing to get away for a short break.

With this in mind, I want to provide you with some important tips for making your trip to the Indianapolis Children’s Museum a fun and memorable experience for everyone involved.

Come explore with me as I provide you with an autism guide to the Indianapolis Children’s Museum!

 

BEFORE YOU GO…

1. Plan out when and how long you can visit.

Can you visit during the weekday when it’s not so crowded?

Sometimes the museum has certain “free days” over holidays…DON’T GO THEN!

It is also very crowded over spring break weekend.  Can you visit one day or two?  Can your family handle only a couple hours at a time or all day with a break?

If you live far away and are spending some time in the area, then consider a two-day experience to spread it out, especially if it becomes too overwhelming after a few hours.

 

2. Explore the website of the Indianapolis Children’s Museum.

You’ll be able to see pictures and a few videos of the different attractions in each exhibit.

Also, watch YouTube videos of the attractions with your autistic loved one to get a better sense of what to expect in terms of behavior or anticipated excitement.

Have fun getting to the know the museum with your child!

 

3. Download the Sensory Guide while you plan your trip.

This very thorough resource is designed to help families with autism have the best possible experience. You can print this out at home or ask for one from a ticket-taker.  You will need to have it with you as you go through the museum as there are no sensory designation signs at the exhibit entrances.

They also provide a Social Narrative that you can read with your autistic loved one at home to prepare for this experience. A very helpful Visual Checklist has social story cue cards—both pre-verbal requests as well as pictures of the exhibits—that you can print off and laminate to use while you are at the museum. You can make a pre-determined schedule based on your child’s interests as well as sensory needs.

You can learn about their full range of their accessibility program here.

 

For better prices, buy your tickets to the Indianapolis Children's Museum online.

4. Find out if you qualify for any discounts.

You can get a 25% discount by buying tickets 2-weeks in advance through the website. If your autistic loved one can’t wait in a long ticket line, this is especially helpful.

They do NOT offer AAA discounts at the museum, but you may ask your local AAA office (as well as employee-based programs) if they can sell discounted tickets.

Consider buying a family membership if you plan spend more than one day there within the year and have more than a couple of children within the family.

Another idea: suggest getting tickets or membership as holiday or birthday gifts.

If you are a resident of Indiana and have Medicaid or your autistic kids have a Medicaid-based family supports waiver, your family qualifies for the Access Pass. It will allow you to get in at $2/person.

The Glass Tower by Dale Chiluly...right through the center of the museum

 

WHEN YOU ARRIVE…

5. Come earlier in the day.

Be there at the hour they open if possible. Usually there are less people in the first couple of hours.

If your child has a hard time waiting in line, have a helper wait with him or her while you go get tickets.

6. Visit the concierge for assistance, including sensory tools.

If you didn’t bring your own noise-cancelling headphones, ask for a pair from the level 1 concierge desk.  (I HIGHLY RECOMMEND THESE AS THIS PLACE CAN BE LOUD.) You can find it past the giant water clock near the elevators.

7. Consider starting at the top floor first, then work your way down.

Most people want to explore the lower levels first. But for a shorter line at the carousel (only $1 to ride/person) visit level 4 first thing in the morning.  The exhibits here—Carousel Wishes & Dreams and Science Works—are also the most sensory-stimulating in terms of noise, tactile- movement, visual-spatial, and lighting. You child may be able to handle this area earlier in the day when he or she is less tired and not ripe for a meltdown.

8. Playscape is open to special needs kids. Normally, this very hands-on, movement-based area (level 3) is only for children 5 and under.  But if your older, autistic child would like to explore water, sand, colors, and a climbing structure, feel free to play here.

Read about amazing kids who made a difference in our world! (Also a good quiet spot)9. For some quiet, down-time, visit The Power of Children.

It is a reflective, educational exhibit (level 3) of the lives of three important children who made a difference in the world.  There may be some spaces that induce a calming effect.

Other quiet areas are found on Level 2:  around the ramp (Mini-Masterpieces and Stories from Our Community) and Big Bad and Bizarre where you can find a dark, quiet overlook of the Dinosphere® exhibit.

 10. When you get hungry…

The Food Court can be very chaotic and loud around lunchtime. There is plenty of space to eat so consider the tables further from the cashiers.

But if you would rather bring your own lunch (especially with a special diet), there is a quiet place outside the food court just inside the Dinosphere®.

Ask the concierge if there are other places you can eat that are quieter.

11. If your child is a runner…

Bring along a tracker device if necessary or something your child can wear with your identification and phone number.

Several exhibits have more than one entrance. Dinosphere® is dark, so it can be hard to constantly track your child.

Alert staff “interpreters” at exhibit entrances that your child has autism and is susceptible to take off without warning. They can alert other staff to locate your child.

Consider bringing along other helpers.  Call ahead to see if your certified respite care worker is entitled to a free ticket (317-334-4000).

 12. Potentially “scary places”…Dinosphere is a sensory-intense envrironment!

These include:

  • the Treasures of the Earth elevator (simulates riding down a semi-dark mine-shaft that rattles);
  • the Planetarium (can be disconcerting due to being very dark and playing shows on the rounded ceiling); and…
  • Dinosphere® (darker area with special effects sounds and sights, including dinosaur growling and stormy weather).

With good preparation, your child might be fine handling these.

Watch a video of the experience. Then create a social story with your child.

 

PLAN WELL…HAVE FUN!

While it’s important to be prepared it’s also important to “go with the flow”.  That includes not pushing your child to keep going when they have had enough.

I recommend spending more than one day if you are not from Indiana. Make it a weekend getaway and visit the Indianapolis Zoo as well!

My autistic kids absolutely love this place, even as teenagers. Every visit has been a little different as they have grown up and the museum morphs with new exhibits. We had our challenges with sensory overload (including me!). But it’s one of the most enriching learning and playful places on the planet.

With an autism guide to the Indianapolis Children’s Museum to help you navigate the sensory experiences, you’ll a greater chance of having a lots of fun!

See Bumblebee and hear him talk at the Indianapolis Children's Museum lobby!

 

 

The Indianapolis Children’s Museum is definitely an experience your family will never forget!

 

 

 

I would love to help you plan a fun-filled getaway like this!  Just click on this link for a free travel consultation!

 

 

Certified Autism Centers versus Autism Friendly

“Certified Autism Centers” Versus “Autism Friendly”

“Certified Autism Centers” Versus “Autism Friendly” Vacation Destinations

It’s hard to know the difference between destinations that are certified autism centers versus autism friendly.

When my kids were little I never even heard of the term “autism friendly”.

Whenever we traveled to visit a children’s museum, a zoo, a county fair, or an amusement park, we handled a sensory meltdown in the best way we could.  Being the one to take them places, I just dealt with it on my own.

Before we really got the chance to make the most of our time at these fun places, out of exhaustion and frustration we often just simply…LEFT.

So, when I found out about certain theme and water parks being “certified autism centers” I was extremely curious.

 

Why is Being a “Certified Autism Center” Such a Big Deal?

In July 2018, Sesame Place in Langhorne, Pennsylvania, became the first theme park to become a designated “Certified Autism Center”…and it was all over the news.

For a parent whose children have autism, it felt like a HUGE deal!  With the certification planted front and center on its website and at the parks, families with autism felt an enormous amount of support and understanding.

In a sense, it was a morale booster for the collective population of autistic individuals and their families. Finally, the world was recognizing that their needs were valued.

 

What Being a “Certified Autism Center” Means

To earn this certification, a company partners with the International Board of Credentialing and Continuing Educations Standards (www.ibcces.org).  This allows parks like Sesame Place to be recognized as adhering to a particular standard in which they provide educated assistance to those with autism.

Other facts about this credential:

  • At least 80% of the staff must complete training to understand what it’s like to have autism, including the differences in sensory awareness, fine and gross motor skills, and social and emotional awareness.

 

  • An on-site review is conducted on a regular basis to ensure greater accommodations in its layout and attractions as well as staff sensitivities to autism needs.

 

  • Detailed sensory guides must be created to let parents know what attractions the child with autism can handle (which can be downloaded and previewed before visiting the park).

 

  • The park offers sensory break rooms and equipment (such as noise-cancelling headphones).

 

  • The end goal is to provide a positive vacation experience to all families, including those with autism.

Sesame Street came out with the first autistic character, Julia, and has been a diversity advocate since the beginning.  It doesn’t surprise me that Sesame Place became the first theme park to earn this important certificate.

Aquatica Orlando became the first waterpark to be designated a “Certified Autism Center”. Just like Sesame Place, you will find resources on its website to plan your visit with your autism family.

For the full list of places that have received the “Certified Autism Center” credential, visit Autism Travel.

 

What Being “Autism Friendly” Means

There are actually many places to visit that are “autism friendly”. They may not have the “autism certified center” designation (YET), but most have a fair amount of accommodations to help autism families.

This also means that their accommodations are not standardized.  Each park has developed their own system to assist people on the spectrum. They may greatly vary in the types of accommodations they offer, so “autism friendly” means different things.

You have to visit each park website—and sometimes really dig to find the information—or call with questions.

Disney Parks

The Disney Parks, like many theme or amusement parks, offer accommodations for waiting in long queues, called the “Disability Access Service”.

In Disneyland, you get the return time for attractions at certain kiosks throughout the park (had to do a  hard “search” for this link!).

In Walt Disney World, you get the return time at the actual attraction itself (link is found under the “Help” tab).

Even though they are both Disney parks, they each have different processes. To my knowledge, cast members direct autism families to their first aid station if they need a “break room” but do not offer a special sensory room.

Dollywood

Dollywood in Pigeon Forge, Tennessee, has created a social story about its park through the website.  They built a “calming room” for those in need a sensory break.  You’ll find items like weighted blankets and a teepee.

They also include rider requirements and accessibility guideline documents to help you prepare for the trip.  Many families have been delighted to find that this park has gone the extra mile to accommodate.

 

Is One Credential Better Than Another?

Parks that are “certified autism centers” are more prepared when it comes to accommodating someone with autism.  They have gone through in-depth training.

In addition, they are more likely to accommodate in not just a systematic, park approach but also in a more sensitive, personal way.

It’s unclear how much autism training “autism friendly” parks employees receive.  I suspect those who help families like ours are more familiar with autism and more sensitive. But this scenario may not always be so consistently.

You can have a good time no matter where you go with the right preparation and a little research.  And THAT is my mission of Your Autism Guide.

Over time, I want to provide you with the right resources to best prepare your family to have a truly enjoyable vacation!

 

I would love to help you figure out the best vacation destination based on your child’s and whole family’s needs.  Just click on this link for a free travel consultation!